Live Like Lorelei

(Susan's Memoir)

Live Like Lorelei is more than a memoir—it’s a mother’s story of grief, grit, and self-discovery through the life of her daughter, Lorelei, who was born with a rare mitochondrial disease. With raw honesty, snarky humor, and stubborn hope, Susan takes readers on a journey from the NICU to the shoreline of loss, weaving heartbreak and laughter into a tapestry of resilience.

This is not just a story about a child who lived bigger than her diagnosis—it’s also about the mother who carried her, grieved her, and, in the process, found her own voice.

For caregivers, parents, and anyone blindsided by life, this memoir is proof that even the messiest stories can hold beauty, and that light still breaks through.

How to Live Like Lorelei

(Lorelei's children's book!)

Inspired by the real Lorelei, How to Live Like Lorelei is a whimsical, watercolor-illustrated picture book that celebrates the magic of living boldly, joyfully, and with hope—even on tough days.

Lorelei—with her pink wheelchair, rainbow stripes, and little brother Benji by her side—shares her “secrets” for fun days, hard days, and all the in-between days. Perfect for families, classrooms, and libraries, this book invites children to see that being different is beautiful, that hope is worth holding on to, and that every child has the power to shine.

Books will be available on Amazon (globally), IngramSpark (globally), and Barnes + Noble.